I thought I had
better stay away from my health issues as I concerned a few people with my
"rant" on Friday. I am just going to show some pictures of my nails and the white spots
and dark lines which have just shown up for years now. I searched online for causes and
couldn't find anything. After my last peroxide soak, about four of the lines
showed up and then lots of "white" dots which I think are the
nematodes and the lines are the actual worms. Gross information, but if I don't document it,
others may have to try and figure it out for themselves and why remake the
wheel. My niece also has these so I know I am not the only one with these but I just wanted to explain what you are seeing
as you read. I'm using them as filler. Here is a post about them. Also, my hand rashes are back. I haven't been soaking them enough, I get busy and forget to do it and it hurts to do so I put it off.
Of course, it has
been a difficult week hearing that you have an illness no one else has but it
doesn't change my daily life. I still feel how I feel. I guess I should have
called my dad to tell him what was going on but as any father, he wants to fix
the problem and since NO ONE knows how to fix this problem, I figured it would
only frustrate him. However, not hearing it from me, I think made him more
frustrated. I told him from now on I would call him with any news.
I then thought how I
worry over my girls and want to fix all their problems and truly felt for my
father. I would worry about me as well. I also got contacted by Princess One
worried about my headaches. I thought I had figured them out but now I think
they are related to the parasite getting worse. My left ear started hurting a week or so ago and has gotten worse.
I have had a
migraine at some point of the day for four or five days in a row. Today, I
didn't get up and attend church. You can ask my children how often that
happens. I go no matter how I feel. I woke over and over in the night with
dreams about water.
I can't say that it
isn't my mind playing some subconscious trick on me since I have read how this
parasite can make it's host commit suicide by jumping into water. I
started thinking about it today as I didn't do much of anything being very tired and
"weird" feeling all day.
I woke early with a
headache and took some pills and went back to bed. Princess came in a few
minutes later as I had just gotten back to sleep. I told her I wasn't feeling
well so she attended church meetings with a friend. I woke and fell asleep with
dream after dream about being on a boat and huge waves overtaking the boat. Or
another was about me diving off the bow of a ship into the ocean. For one, I
can't dive. Two, I would NEVER go head first into the ocean as I would jump in with
my nose plugged as water gets in my nose when I dive as it does with everyone
in my family.
Twice today, even
while awake, I went to a story in my head about a book I listened to a few
months ago about an ocean liner going down in the middle of the ocean. This
just happened at odd times through the day when I was laying on the couch or
getting dinner ready etc.
When I thought about
it, I realized that I have been chewing ice lately, and in the last two months,
I have purchased more Popsicles, creamies, Italian ice and any other frozen /
water type treat I can get my hands on. That is NOT like me. I don't know if it
is my way of keeping the parasite down with the cold, or if it is something I am craving
because of them. I will eat 1-5 a day. I have never done that in my life.
I am sorry for my
rant last week, It is not something I usually do but when you feel horrible,
sometimes one just needs to let it out. I really can't wait until Wednesday's
test are over as I can feel these things getting worse as I can feel them now
moving through my sinus and still moving through my heart. Before, it was
mostly just pain but the past few weeks it has been actual moving in the heart
were as before I could only feel them in my lungs and gut.
I contacted the CDC
and got transferred over and over to people who told me that they would give me
information on my diagnosis only to say they had "no information on file for this parasite". Finally, they
said they needed medical personnel to call and when I told them I was an RN,
they happily gave me the number to that phone line. I left a message including
the lab that did the test to diagnose the parasite, my Dr. name and my
information praying that something would be looked at finally.
I have had a few
people contact me that have read my post and claim to have similar symptoms. If
you know anyone that does, please have them contact me so I can gather names of
people to be tested if I can get someone to listen. One of them has a pet
reptile and feeds them crickets so I could see how they could get this but I
hate bugs and most pets, so for me, that wouldn't be the way that I would get
this.
I did have a weird
dream the other night. You know if you read my blog, I have had many dreams come
true and a dream started this whole thing. I had a dream that I had three
parasites and one was affecting my head.
So, in this dream, I am with my
brother. In real life, he has similar health problems and has to watch what he eats being
gluten and casein free. He also had a weird eye problem where his eye iris
wouldn't expand or contract and his pupil would stay open all the time.
The woman I was
sharing about with the lizard, it seems her son had some similar issues with his
eyes. Anyway, that was a tangent from my dream. In the most recent dream, my brother and I were eating.
In the dream, an autistic boy kept trying to get at my food and water. He
wouldn't stop and I kept telling him "I wasn't finished yet." he
wouldn't stop until he got my water from the table and started drinking it fast and as much as he could. I freaked out thinking I didn't want him to get
the parasite from me. Then, Dr.'s or scientists came and started studying my
food. All the sudden, there was a worm on my plate. Then, there were more and
more and more and they started to morph and I walked away from the table and
there were more and more scientists looking at these worms that started to
morph and take wings and jump to the ground. It freaked me out and I woke up.
It took me a few
days to really grasp what I believe is the meaning of the dream. I think that perhaps autistic children get it in the womb from the fluid. Before they are in the world. As in, "I wasn't finished yet." and he was drinking in the water. Not sure how else to take it as I have no sons and don't share my water with anyone.
The food part, at first, not
many people are looking into this but once it gets out that a new human
parasite has been discovered, it got more and more scientists attention. Then,
as they found more and more cases of it, they discovered that there are more
than one type. Similar to how there are many types of thread worm, there are
many types of this worm. We have just been missing it due to the lack of being
able to diagnose it and how small it is in the lung, lymph etc.
Once they found it
had many types, each scientist followed the type that concerned them. Some were
on the ground and some took wings so those would be the more common once or it
could mean that in the first stage they are in the soil and a scientist of soil
looks at that phase of the parasites life. then it morphs into the lung / human
lymph / heart stage. Then the gut stage. So, different doctors would study it
in the different stages and the different organs that it effect. That is the end of dream stuff.
I got a call to
donate blood this week. I wondered how many people will donate blood this week
in our area who have symptoms of this and not even know they could be infecting
someone else with this horrible curse? It made me think
that it will be a long time or, maybe never again, that I will donated unless
they start screening for this parasite and others.
I will keep you
informed of what response I get from the CDC, my echo and my heart condition
and my response to the new over the counter medication I am going to try.
I have felt water
logged all day and yet still am drinking water. I also have been extremely
tired today even though I haven't done much. My teeth and head have hurt but
there is a storm coming in but I don't think it explains four or five days of
severe headaches.
Thank you all for
your prayers and concern. I have some fun blog posts I want to share but
figured I should update you after that horrible post last Friday. I will try to
be more upbeat and grateful as I have shared with many of my friends and family
this week. I AM grateful that I have the strength to push through the red tape
to find a diagnosis. I could have treated myself and my family up front but
wanted to be able to help my neighbors and family (extended) get treated and I
can't just tell everyone to purchase something and take it. Many wouldn't even
know the symptoms if I hadn't gone through this hyper infection as I only had a
few of the symptoms before. I KNOW that God has HIS hand in this so I could
help not just my own children and family, but neighbors and friends that are
having different symptoms.
I talked with a few
people this week with some horrible health problems, surgeries, loss of jobs
and family members and it once again made me VERY grateful for my life. Crazy
as it may seem at the moment, it is mine!