Wednesday, September 9, 2015

Official Human Diagnosis - Horsehair Nematomorpha Gordian Worm Insect Parasite Part - 9

PLEASE NOTE: I have about nine posts prior to this about all my symptoms and history of all the things we have tried etc. Please type in "Parasite" in the search box at the bottom of this page to see all those other posts. There are too many to link on here

I have had a stressful week as I got some interesting news. As you all know if you read this blog, I have been struggling trying to find out about my health problems for a very long time and since I had all the symptoms of thread worm, we assumed it was that since none of my parasite stool samples came back with anything.
It is odd that I could see them in my stool and put them in the cup for culture but for some reason, they weren't found in the stool. Later, I discovered that both hook worm and thread worm change with the chemicals in the stool parasite test to preserve them. 

This make most of the samples negative even though they are positive. Those sites suggested a "wet mount" view looking at the parasites under a microscope just after collecting the specimen. 

After talking with the local lab, they have no way to do that and another site suggested using blood agar plates that the parasites will burrow into the agar but our local labs also have no agar plates so I was extremely frustrated and didn't know what to do. 
 
I finally said a desperate prayer not knowing what to do. Not five minutes after the prayer, I used the bathroom and after wiping I had a ball of something on the base of my thumb. It felt like one of those sticky hands you throw at the wall and it sticks. I couldn't get it off. As I tried, It started to uncoil into a long worm. I was going to put it into alcohol but felt STRONGLY that I had to put it into normal saline. Of course, normal homes don't have saline but Contact Eye Solution is normal saline so I squirted some into a baggie and stuck the parasite into the baggie. 

As you can see by the photos, it was about 8 inches long. I accidently broke one end off trying to get it off my finger it was so dry and goopy from the ointment. That in itself grosses me out. In all the years I have had these, I have never had one show up like that but I have been spreading ointment to hold the diatomaceous earth on my rashes and I think it died trying to lay eggs.    

It was 5:30 on a Friday night and the Dr. offices are closed but I KNEW I had to get it looked into. I rushed to the hospital lab asking if they could send it to the state lab and the worker wasn't having his best moment and thought I was crazy and was kinda rude when I told him I thought the parasite I have and all of my neighbors are having symptoms of is one they haven't diagnosed yet as it is a bit different than all those I could find and wasn't responding to the treatment a Strongyloides would. He told me there wasn't any parasite that people haven't found yet and made me search out the Dr. I called his home eventually as he has no service and his message on his work phone said to go to the ER. I found him in the delivery room where he had just finished up. 
 
He looked at the worm under the scope and could tell it was a real worm of some kind and then sent it to the lab against the better judgement of the lab worker. I called back a few days later and the Dr.'s office wouldn't tell me the result but only that I had gotten the worm identified. That was happy news. I figured we could get it treated and I would be great. Ummmm. I called back the next day asking for information so I could research it BEFORE my visit with him so I could ask questions. They had to ask him if it was "OK" to give me the results of my own test. 

I found out that it is an insect parasite and there have only ever been two human cases and those were only stating that they found the worm in vomit of an 80 year old and case 2 - one in the throat of an infant. They didn't tell how to diagnose or treat it. I hoped that the Dr. would have more access to information so I waited to post this blog post in hopes that when I went to his office today, he would be able to give me more information as to what it is and how to treat it. NOPE! He got just about as much information about it as I did off the web. I watched hours of this worm coming out of grasshoppers and cockroaches online. No information on human illness at all. 

Problem is, everyone around me has it. I went to the lab and took in a "Thank you" gift for the lab guy who was so rude telling him "thanks" for putting up with my stress at trying to get this identified. He was a bit embarrassed that it was a parasite not know in humans before but even more strange was that he confessed that he is also having the same symptoms so perhaps his lashing out at me was his fear that he may have it. I have had this reaction with many people who tell me they are having the symptoms of a High white blood count (eosinophilia), lung damage of some kind, heart symptoms, rashes etc.  

My Dr. said that the two drugs I have been on for months are the main line of defense and if they don't work, he doesn't know what to tell me. He suggested "PIN-X" which is over the counter without a prescription from the pharmacy and that is my last option other than getting some Vermox from another country. I know it worked for me but I didn't have any to take for follow up nor did I know I would need to and figured the Dr. could prescribe it but it is no longer available in the US. Frustrating that it worked and was about $0.50 a dose where as the drug that is close is $4000 a week. So, who got it banned in the U.S. I wonder as it has been used for decades as the parasite remover of choice? . 

I can't start treatment until I get an echocardiagram next week. They want to see if they can visualize worms in the heart and see how much damage has been done by the parasites as my heart hurts almost around the clock now and I can feel something creeping around in there. It is worse if I eat something like Curry then they all migrate up from the gut into the chest. 

For months I have been feeling needle like point pricks on the back of my knee and other soft fleshy areas and the other morning I woke up to find a little piece of a worm sticking out of my forearm where the skin is soft. I had been getting little bumps like cysts on those soft skin areas for months but couldn't figure out what it was. It is an exit site where they come out and then go back in not fully coming out all the way. I had covered my hands and arm with ointment and the diatomaceous earth the night before and I guess that dried out the part that came out and it died outside of the skin and was just hanging out of the bump when I woke. 

I have been fighting red eyes again as well. If I don't keep up on spraying them with Colloidal silver, they get very red, start oozing goo and then I have the flashes in my eyes again. I can't be blind so I have been keeping up on the sprays but even then, you can see I fight the red eyes. The Visine red eye spray works very well as I am embarrassed to go places with such red eyes so it is a blessing that it works so well as you can see in my pictures of before and after. 

The video above is me talking about how to get this diagnosed. You can always just soak your hands in water, then dip them into hydrogen peroxide. In the early stages, I thought I needed to soak in peroxide for a length of time. This parasite loves water and actually makes it's insect host jump into water and then it leaves the host. When I would hold the girls after boating or something, wherever our skin touched, we would get rashes. 

Sometimes, using a hand towel, they would get rashes from each other, that is why we use paper towels in all our bathrooms and kitchen for drying of hands. So, it makes sense that soaking your hands in water, bathing or showering or doing the dishes is enough to get the parasites to the surface of your skin. Then, just dip your hand in peroxide and let it air dry. In five minutes or so, your hand will start to show signs of parasites under the skin. You don't have to spend all that time in the peroxide as I thought in the beginning. 

To get an actual diagnosis, you will need to find a parasite worm. I eliminated into a bag, added a little water and swished it around. As you can see in the second picture about this, you can see in the left bottom a lighter colored worm. It doesn't take much after a minute you can use a long thin dowel, knitting needle or anything else to collect the worms. They like to grab onto something so if you just run it back and forth, you will end up with some on the stick. I had an odd knitting needle without a pair so I just used that. 

You will need to use contact solution to keep it moist so it doesn't dry up and they can't identify it. Try to keep any stool out of the solution so you can clearly see the worms. When you have many of different sizes, take it to the lab. They won't like getting it this way but if you give them a stool sample in the little cup, they put water in, spin it with the chemicals in the container and then put a small concentrated amount for view. This way, they have to identify the worm and not just look for eggs. 

You can see in the picture below my thumb, one of the worms about an inch and a bit long is on the plastic. If you shake it up, often they will stick to the sides as I shared they like to hold onto things.

You can see in the video that I swirl it in the mixture and this worm is just coiled onto the end and that will happen over and over as they like to coil and gather into knots with each-other like snakes will do sometimes and get into a ball. 

I collected many of different sizes and put them into the solution and double bagged it, actually, I triple bagged it and then you can take it to the lab. There is some documentation about a lab keeping a similar one in a bag for a week and then changing out the saline and into another container with saline for another week hoping it would lay eggs but they finally put it in alcohol so they could keep it. 

This is very personal and embarrassing for me to post but I figure I have gotten help from many people and appreciate that they are so willing to share that I need to overcome my issues and share that it may help others. 

I pray I NEVER need to do this again but wanted to have some before I started treatment as my Dr. told me to contact the CDC and I also contacted someone who specializes in this type of parasite hoping for some guidance as to who can give me some help. Personally, I think it will take some looking into to figure out where the parasite is coming from in our community.

I have had a few thoughts that since this parasite likes water, perhaps the worms in the soil are entering tomatoes, melons and cucumbers for the water content and then we consume them raw and they hatch once inside. 

OR, perhaps it is the swamp coolers and the moisture being pumped onto the mats and then blowing into the house have little eggs we are inhaling?  

Or, we are getting them from the soil like hook work and thread worm by walking and working barefoot. 

Or, we are getting it from a mosquito bite. There are plenty of those around in the summer.  

The options are endless. Truly, I know God is in charge. I prayed and He inspired me to use hydrogen peroxide on the skin and lungs which led to seeing the parasites. I prayed and found the 8 inch worm minutes later. I prayed and was inspired to use Normal Saline instead of alcohol or leaving it dry. I had another dream last night, it had something to do with autistic kids and the parasite. It made me wonder if mom's that have the parasite in the uterus, could pass it on in development to baby causing autism as we know this parasite likes fluid and where does an infant live? Fluid. So, I am sure at some point, we will figure out what to do to treat this and it would be interesting to see if it helps autistic children improve.


Keep up your prayers. I know they are helping and we still need to figure out treatments and spread the word to all those who have it and don't know why they are having the health problems they are having. 

I appreciate all the prayers you have given in my behalf and pray myself that you never get this!

63 comments:

  1. Hello. This is so real. I have been suspecting parasites for about the past 10 years. I have even travel to other countries doing my own personal research because no one can give me any answers. I have gone to travel clinics to get tested, I have done several stool samples, but the medical establishment seems to think I am making this all up. I have contacted the CDC and the doctor who is the Head of the health department in a country which I once lived. Family members and others believe I am a little on the nutty side because I am telling and trying to prove to them parasites that have caused my mother's death, and I believe have infected me, and have infected my daughters. So true. I thank god for you and your evidence. I have, even late last year, eliminated into a ziploc bag to try to figure out what is wrong with me, but it's more in an effort to help my daughters who may have the parasites also. I have one daughter, 21 year old, who was a star student but after reaching high school her health (rashes, pimples, fungi-feet, palor), drive and energy just kept deteriorating. My younger daughter has a 25% Autism diagnosis (don't really have a good idea of what that means). I am very glad to have found your post. I have been up since 2:30 in the morning, it's now 7:30 researching ways to help her. I have learned a lot about parasites, but have not yet been able to get a specimen. I will continue though. I am close to staining some from my stool. The first and second try did not go so well, I am fine tuning my trials. I will inform you. I have written to countless people trying to get information and assistance, but no one seems to be listening. Thanks for your information. I will be following your blog.

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  2. I had some potting soil in that garage all winter in a clear plastic storage bin. 2 long sprout looking things were laying across the soil but both ends were pointing down into the soil. I thought it seemed a little creepy so I used something to toss them down the basement sink. Later, I took a paper towel to clean the sink and picked a 6 to 8 inch wet string out of the drain. It looked something like a wet angel hair noodle. I held it up more closely to look at it and it quickly turned up on the end and jabbed me in the face several times. I screamed and threw it down. My husband came in and thought it looked like a wet string. He used a paper towel towel to pick up one end and as he brought it closed to his body, it turned up toward him. The nurse practitioner humored me and ran 2 stool samples which did not detect anything. The other "sprout" looking creature was found dried out on the bottom of a dishpan. We rarely use that sink. It had to have come back up the drain. My heart now bothers me too and I have a constant cough. I have coughed up little segments of a pasta like substance. This is a nightmare.

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    1. I believe it is in the soil. If you did get it, it won't show up in the stool samples as they don't test for this specific parasite in humans (yet) but hopefully they will figure it out soon. If you have any of the symptoms I have, try the soaking or spraying with hydrogen peroxide for a few hours of spraying it on and letting it air dry and then spraying it again and see if any white parasite bumps come up. It does look like a noodle, string and does like the acid on the skin. It is similar to hook worm and thread worm which can sense the acid on your skin so it knows how to find a host. You have more of that acid on your thicker parts like feet and calloused hands. Some don't have worms in their stool as the worms are hosted in different parts in different people. Keep trying if you think you have them as the more people that get diagnosed, the more attention the cdc will give it!

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  3. I am 100% sure my family and I (5 kids age 3-10 included) have this and I am terrified and don't know what to do!! The er said I was crazy! my fiance had them in a sore on his face and put orajel on it trying to get the pain to quit but they absorbed the orajel and it either paralyzed them or killed them and they all started falling out! So that might help! Please email me!!

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  4. Hi Karey, I don't know how to email you but you can private message me on youtube my channel is "thesecretisgratitude" and I can write you back there. I am interested in the Orajel information, I will have to look into that as they are in my hair and driving me crazy! I wish I could tell you I know how to cure them but I don't. I have no information on it other than my blog where I share what has helped me. I am still trying different things and haven't had a ton of luck. I know my girls have it as well and most of my neighbors and I get messages daily on youtube and on my blog here with people having the same problems but I have no answer other than to post about it and I hope people like you continue to write publicly on here and on youtube so that the CDC and others can see there is a real issue. I am sure I could help them develop a few tests that would make it easy to diagnose people quickly as I have tried things on myself and my girls to see if we can get them in nasal, throat and skin rather quickly using the peroxide to get them out. I will look into the orajel so thank you for sharing that. Keep checking back on my blog as I will update it if I figure anything out! I'll say a prayer for your family and NO your are NOT crazy. This is VERY real and now at least we can put a name to it as they were finally able to see what parasite it is so lets let everyone know this is a problem!

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  5. Also look up toxoplasmosis gordii

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    1. I was tested for toxoplasmosis before any of the other tests because I had several dreams I had a cat parasite but it was negative. Come to find out, this parasite most likely is being spread by cats in the soil.

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  6. I also found this on this site

    http://www.medhelp.org/posts/Undiagnosed-Symptoms/Mysterious-bug-under-my-skin--crawling-on-my-scalp/show/1346383?li_source=LI&li_medium=default-widget#post_answer_header

    I just went threw the same thing and I'm going to tell you it was a nightmare for 4 years. I understand,finally a doctor took interest in me and didn't stop till he found the answer. Now I've had every one of the signs that 80 percent of the people on here.if you are feeling the movement in your head, the scalp area then just no it has been there for about 3 years, it is fungas this bacteria moves threw your whole body and you will be misdiagnosed if you don't listen. Tell your doctor you need Biaxin DS 800 mlg twice a day for 30 days also you need body cleanser to completely dry your self out, so you are starving the fungis,no lotions nothing,then you need MUPIROCIN 2% ointment put it in one side of your nose one night then the next night the other side for 30 days. Now you have to get up daily get those night clothes off and the sheet you use off the bed including pillow case, wash your hands as soon as you open your eyes. Also put vinager in your laundry 1 cup to kill bacteria and fungus, clean as much as you can with vinager you really have to make sure you use a clean wash cloth daily with a clean towel, and you will not believe how fast you are cured,also stay away from sugar it feeds the bacteria I love to drink organic apple cider mother,I have never felt better

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    1. I used lavender Castille soap as a shampoo and left it in for a good 10 minutes. It felt as if ants were crawling around my scalp. I left it on till the sensation stopped. I am going to continue to use on my head and body. Also, it feels like something is in my nose and ears. I keep getting small hairs out of my ears on cotton swabs. Has anyone gone to the optometrist and did they see anything in your eyes? Also, I Did not have tinnitus prior to this. Now the noise is constant and loud.

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    2. Thank you for your information on the castille soap. I will have to find some and try it. They like any part of the body where there is hair. arms, groin, hairlines, nose etc. On the ears, be careful using cotton swabs as they have thread worm in them that have put themselves in a cyst form, I read that online and thought it couldn't be possible but then put one in hydrogen peroxide in my ear and they started coming out of the q-tip. The same will happen with a cotton ball. I will spray hydrogen peroxide into my ear using a nasal spay container and let it sit for a few minutes and then wrap a q-tip in a paper towel and use it to clean out my ear when I feel them creeping in there. I have also used a soft cotton t-shirt cut into squares and put that over the q-tip to clean out my ears. I have sprayed the 3% hydrogen peroxide up my nose when I can feel the "creeping" and then will blow my nose but it hurts so I don't suggest that unless you are desperate. They all look like fine hairs when looked at under a magnifying jewelers loop. I posted a few new videos of a 1 1/2 inch parasite that came out of the skin after a shower and leaving the wet hair on the t-shirt and about an hour later, I thought it was a hair but when I picked it up, it started moving. I took three different videos of it last week doing different things. It did NOT like the cuticle oil I had on my hand when I put it in the hand that had the oil so I know they don't like oil as they are like a snake or worm and then the oil coats them so they can't grip things. I am guessing the oils in the shampoo and soap you bought are the reason they don't like it much. https://www.youtube.com/watch?v=THZ9NjhKBg4 is the link to the first video I just uploaded about the worm coming out of the skin. I also have a video on my channel of the one that came out of my ear but I can say if it is out of me or out of the q-tip. I just know it was after I put the peroxide in my ear using the q-tip to put the peroxide IN my ear. I don't do that anymore and just spray it in. Check out all the videos on my channel and you will be grossed out but at least you will know what you are looking for.... Thanks for sharing your success with the soap! We all need to get this diagnosed asap so they will start taking it seriously.

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  7. I wish in a way it was a fungus as I know just going on a sugar free diet will keep it down. I can actually feel the parasite moving. It feels like someone is pulling a string through my heart, gut etc. These parasites can get very long. The one that I took in was about 8 inches long and the ones in my stool I took in the first time were about four inches long. These are alive and not a fungus but there could be a micro-parasite / fungus associated somehow. I am meeting with my Dr. in a few weeks to go over some things and am going to have him try me on some antibiotics and hopefully some IV therapy to see if better absorption on nutrients helps. I'll post about it if it works.

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    1. Hello I have a friend having issues like this I was wondering what Dr. you are seeing? The Dr. they see isn't to keen on looking beyond the scope of "normal" issues or dismissing their symptoms altogether. Thank you in advance!

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    2. My Dr. has asked that until we find a cure, he doesn't want to have more patients as he cant help them with a cure. He is near retirement and isn't taking new patients. I would suggest that she show her Dr the parasites in the stool if she can find them. Not everyone has them in the stool however. If she can use the hydrogen peroxide and show him the parasites coming up under the skin, that may help. Showing them a video online doesn't appeal to most Dr.'s. Also, if she has the bumps in the back of the throat, trying to drink the Spicy V8 and scraping the parasites in the back of the throat and sending those scrapings in may bring some results if they notify the lab that it is suspected she has "horsehair Nematomorpha" if the scrapings don't come back as a known human parasite. And if she does find some in the stool, she should write on the specimen that they suspect "horsehair nematomorpha" in case they can't figure out what type parasite they are as they usually only look for "known" human parasites. This whole situation is so frustrating. If she finds worms, have her put them in contact solution to send them up. If they do a stool culture, they will NOT find these parasites as they don't look for them. She has to send in just the worms! I wish her well. Sorry I can't help more.

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  8. Replies
    1. Hi Karey, I know there are many different beliefs on Morgellons and some think it is genetic mutations, some think it is bio-designed, I think that many people who have gone with that "catch all" of morgellons, probably do have horsehair nemotamorpha and since there is no easy tests for it, Dr.s don't know how to diagnose it so people had to find their own path to figure it out. I add "morgellons" in my video titles on youtube so that people can perhaps get the correct medical diagnosis so that the CDC and local health departments will get enough diagnosed cases that they will have to start taking it seriously. Sorry I haven't replied to you yet, as you can see by my blog, we have had a busy few weeks! Hope that we can all figure this out together!

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    2. I recently found out i have atringyloids, and found how to treat them from a man who almoat died from hyperinfection. You treat long term by moon cycles, with several meds as they hatch. His mom healed him, she is a vet. Hint on rbe kinds of meds used. He is not interested in publicity, but has helped a lot of people. You can respond if you think it might also help.

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    3. Hi, I would be interested if you want to write me privately on youtube with his information, no one can see it but me. My youtube channel is thesecretisgratitude and you can write private messages by going to the bottom of the home page on my channel. I am interested in anything that may help cure this. I have spoken to vets and haven't gotten anything other than what they treat humans with and none of those have worked. Thanks for contacting me. I am a bit confused by the "hint" line. Thanks again.

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  9. Hi,
    I have tried the hydrogen peroxide thing and I get the same as you on my hands but worst place for me is my neck, jaw line and face. That is until I used corsodyl mouthwash to wash my neck hoping to relieve the itching. We what happened probably will sound insane but loads of seed shaped things and worm like things came out instantly and painlessly while rubbing and the skin after looked as if there was never a problem, no bleeding or exit holes. So strange. I've been doing this several times a day and the numbers have greatly reduced so I'm hopeful that I'm getting to the source of the problem or at least preventing these "babies" from maturing and depositing more of their disgusting offspring into my skin! I hope this helps someone gain some relief as it has helped me.

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    1. Thank you so much ? for sharing what has worked for you. I will share this in an update post so that when people search my blog, they can see this. The neck thing is that they come out of the lung between the first and second stage of life and crawl up the back of the throat where they pop out and irritate causing a dry, tickling cough. Then they get into the lymph for the second phase just under the skin so you are getting them in transition from stage one to two. Yahoo for finding something to take the numbers down!!! Thanks again for sharing.

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  10. Bathing in as hot of water as possible with at least 2 cups of bleach, sometimes I'll even pour it straight onto my skin.... That put this into remission on the surface of my skin for 2 years. But I still had the fatigue so I now stopped so I'll know if I actually cure it. Mine only flares up when I take my adderall prescribed for ADHD, also yeast medications make it worse, when I take adderall they com out in the hundreds and then for a few days I'm sick after but then I feel so much better for about 2 weeks like its purging my body. Mabendazole 500mg once seems to have really helped, I am also taking albendazole 400mg twice a day. That seems to help some but not nearly as much as e mabendazole. Fasting for 3 days also helps to detox from them. Nothing but sugar water and water for three days. I know pyrantel made them spread, a apple cider vinegar enema made me feel like I was dying and scattered them. My heart hurts but I think that symptom is from the bile backing up causing acid reflux cause they clog the bile ducts. The Castile soap really does help. Also putting deodorant antiperspirant over the irritated areas clogs the pores so they can't come to the surface so they move.

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    1. Thank you for sharing what has worked for you. Hopefully others will continue to share what has worked for them and we can figure out what works best and maybe find an actual cure!

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  11. I am meeting with the top infectious disease specialists at Dartmouth Hitchcock Medical Center very soon. I hope we can find a cure for this. I have two sample containers full of them but I've only ever seen then in the white hair like form. Never seen the larger ones like you finally got your diagnosis from. I also have them in formalin so I haven't had any actively come to the surface since I saw your post about the saline. These things have driven me to the point of feeling suicidal, worrying if I'm infecting my family and pets and the exhaustion is unreal. Do you have a place I can send you pictures of the time I put bleach directly on my skin and 100's all came out at the same time wherever the bleach was touching my skin? Thank you for being so open about this... Your videos and website have given me some hope!

    AV

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  12. Also is there a place where you list all the meds you have tried to use to cure this? Thank you again for all that you share! One day their will be a medical journal write up about the work you have put into this!

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    1. Feel free to write me on my youtube channel. You can private message me there.
      thesecretisgratitude is my channel.

      I thought I had written up all the meds on one post but may not have. I have tried ivermectin, prazyquital, mebendazole, albendazole, pyrantle, eaten papaya seeds, pumpkin seeds, walnuts, lots of over the counter and online anti-parasite blends with black walnut hull etc. limes, etc. The only thing that worked was the old Vermox that was 15+ years old. Don't know if the old mix is the same as the new mix but purchasing it online hasn't worked for some people I know and wonder if the amounts are less or just not the same now or the online stuff isn't real etc.

      I don't care to be written up anywhere, I just want to feel better and not be so tired and want to help my family, neighbors and friends who are also suffering. In all reality, I would love to take down anything associated with this parasite and not have anyone know anything about it and my link with it. It is embarrassing and stressful as I get all sorts of rude comments about my posts. For some reason, it offends people that I mention God in any form or think for a minute that HE may care about me.

      It is such a horrible nightmare for those suffering with this as you well know and it would be wonderful to be able to see and end to the suffering.

      I wish you well with your Dr's visit and suggest maybe spraying with the peroxide the night before so that you can take in a small bottle when you are there and spray it on so they can see the worms under the skin while you are at the visit! Best wishes!

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  13. Have you had any weird electrical weirdnesses with these hair parasites? As in maybe watching them morph from a dark colored dog looking hair, into completely transparent and electrica
    lly charged, back to inanimate and dark?

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    1. I have not had any electrical / changing / lights or anything else. It is actually hard to find them if you keep them out of the gut. They are in muscle and organs and difficult to see inside or out. I do feel them daily though.

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  14. I am wondering if the worm I am seeing is horse hair worm. My home is surrounded by farms with many sheep, goats, and cows. There must be horses too. Not to mention whatever other animal there may be. There are five or six cows grazing behind my home, uphill from our well. The well is drilled though. I thought because of the depth of the well and the distance between the cows and the well, and the small number of cows that there wouldn’t be a problem. Plus the freezing cold weather is in the winter and the water runs down the hill in the spring. Today I read that the hairworms can live after they have been frozen. Plus, there is a big river at the foot of my street. Those worms breed in rivers. I once took a header off of my bike with my grandson there. I thought he was going to be traumatized by all the blood, and seeing his grandmother flying through the air. So, I went out on the river rocks and rinsed the blood off of my arm. I had a hole in my elbow. I am wondering how long a person can have those worms before they get bad enough to notice. Prior to getting the horrible symptoms I had an area of paticcia (blood spots) with numbness on my forearm. I ignored it and forgot about it. Now that area is one of the areas so difficult to get to heal. I found your blog when I was looking up hairworm. I went on the Tractor Supply store website to see what medications are used to control hairworm that horses have. The one I found is a combination of two medications. It is called: Equimax (Ivermectin 1.87%/Praiquantel 14.03%) Paste, 6.42 g. I am wondering if your doctor has given you this combination, or some other combination of drugs? While I know people do take Ivermectin, I don't know about the other medication, or combination of medications. I have read that in veterinary medicine sometimes more than one medication is used to treat certain parasites. I also read that while one medication may kill an adult worm it may not kill the larvae and vise versa. I have tried two medications, but not at the same time and not the combination I have listed here. Hairworms are supposed to be rare in humans, but Lyme disease is not rare. In fact, it is endemic in some areas of the United States. Even though you have hairworm I am wondering if some of your neighbors may have Lyme disease. It is thought that there may be a worm associated with Lyme Disease and the worm may not be the same in every person. I do know you have the hairworm and I am glad that you got it diagnosed. I am sorry that you have it though. I wish there was an easy fix for you.

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    1. I am sorry you are suffering with this. I have tried both ivermectin and praziquantel both several times and in combination with other meds but I have not tried both of those at the same time. you can type them into my blog search at the bottom of the page and read about when and how I took them.

      I did get some good news on my youtube channel about Vermox (mebendazole) being available in the US again and am going to call my Dr. today about getting some to try as that was the only thing that worked for me in larger doses before I realized it wasn't available in the US anymore. I will write updates as I try it and hope that it will work as my infection has gotten much worse since my surgery just over a month ago. Something I took made them propagate something awful! I pray that Science will come up with a test so that people can just get a blood test for it. I have been tested, and some of my kids were tested for Lyme and they were negative. All the symptoms I have are different and much more like hook worm and thread worm so I think its life cycle is more like theirs than that of a lyme type. I don't doubt there can be more than one parasite but with all the drugs I have tried, I don't think many would be left other than this one. Thanks for your words and I pray we can figure this out for all our sakes!

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  15. Hello again,
    I am wondering if you or anyone else you know of has tried the Lyme Protocol found on the LymePhotos website. I tried it and felt it did help me. I am trying it again.

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    1. I have not tried it. Maybe someone else will chime in about it. Please let us know how it works for you.

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  16. Thank you for posting i have exact same same thing going on have been to numeros hospitals everyone keeps treating me like i am crazy. My 2 kids i think i will have to take my 3rd in were just taken in for same type of pain. There dr. Is Doing culture and said they have bad utis. Did you ever find a treatment that works

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  17. Hi Brandi, I also got UTI's from these, I think when they burrow from the gut into the bladder, sometimes they carry bacteria. I haven't cured them but just started vermox (mebendazole)which is now available in the US again but I haven't seen any results in the past few days but will give it some time and I think I may need a higher dosage as I have gotten quite large due to this.

    You may have better luck if you can dig in their stool, or yours, and find actual worms and send them in to the lab in contact solution which is the closest you can get to the human body. If you do find some, you may want to just send a note up saying you think it may be horsehair nermotamorpha or they won't be able to figure it out as it isn't in the human parasite database. Have you been tested for hook worm or thread worm? It may be good to have them rule those parasites out as they have all the same symptoms as this parasite. I wish you luck in your search! God bless!

    UTIs can also be caused by colored toilet paper, bubble bath, wiping back to front, not washing well etc. Check out D-Mannos as it helped our family with our UTI's greatly. I wish I had known about it earlier. Cranberry pills also but mostly the D-mannos from the health food store. It is a simple sugar that won't allow bacteria to grow in the bladder and other areas.

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  18. Praise Him daily for all things great and small. I also have worms that I am unsure of. They are in the soil I think.I am having a difficult time getting any one to take me seriously and getting help. Like you I have had to find cures and what helps on my own. I can only trust God to bring me through all this and my farm animals too. I have a feeling the property was infested and known to be when we bought it in 2012. Are we having fun yet? LOL

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  19. Chào bạn. Tôi cũng bị những con vật này hoành hành. Vào một đêm khi tôi ngủ dậy, có 1 con gián chui vào tai, và một con chui vào mũi tôi. Sau đó tôi cảm giác có con giun bò dưới da. Tôi cũng đã thử albendazol 400mg 2 làn 1 ngày, nhưng chúng ko chết mà chỉ bị tê liệt trong thời gian dùng thuốc. :(
    Theo như tôi tìm hiểu, thì giun đuôi ngựa là loài ăn thịt, vì vậy thuốc giun không có hiệu quả nhiều. Chúng ở dưới lớp da, chúng cần thở.
    Chúc cho bạn mau khỏi bệnh, tìm ra giải pháp điều trị sớm. Và mong bạn luôn thông tin tới mọi người.

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    1. This is what the above comment says on google translate: Say hello to you. I also suffer from these animals. On a night when I woke, a cockroach crawl into the ears, and a squeeze on my nose. Then I feel there are worms crawling under the skin. I also tried 400mg albendazol 2 lanes 1 day, but they're not dead which only paralyzed during dosing. :( As far as I understand, the horse tail worms are carnivores, so no more effective worm medicine. Them in under the skin, they need to breathe. Wish for you to lick out the disease, find the solution treatment soon. And always look forward to you information to everyone.

      Thank you Long Le for your comments and I wish for a cure as well. I am so sorry you are dealing with this crazy parasite along with the rest of us. It is a horrible thing and hopefully, science will catch up and help us find a cure for this! Even a test for it would be great! Thanks for sharing and hope you have a BLESSED DAY!

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  20. ve you tried diatomaceous earth taken daily? How is the Vermox going? Where did you purchase it?

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    1. I have tried taking it daily and it only kills those in the gut. Not the organs, muscles or fluids of the body. I got a prescription for the vermox and have a post about how expensive it is to buy in the US. $25,000 for a month supply. It didn't work but I think it is the dosages. It didn't do anything in the recommended dosages and I even went higher on the dosages so I think I was taking over the top amounts when I first took it. I have liver issues now and am scared to try it at higher dosages. Thanks for your comments and have a BLESSED DAY!

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    2. I am so grateful for your post. I am having many similar symptoms....white granules coming out of my nose(itches terribly), on my face and facial areas and now in localized areas of my body. I have been able to pull them out with tweezers and sometimes not, as they burrow back inside my skin. It first started around my bum. Thought it was pin worms but the tape test came back negative. At night was the worst, I would get intense itching to almost a biting feeling...I would take a piece of packaging tape and you could see these tiny nits or something. In the morning you could see on underwear too.This is just so weird and a bit scary too. I am itchy all over and it is most prevalent at night and early morning. I have small round areas that look kinda similar to moles but are not. I think they might be what you have described above. I have had a sensation of something in my throat for about five years now and it seems to be getting larger/worse. The ENT said it was probably reflux/gerd several years ago, gave me a prescription but it didn't help. I have fluttering in my nose (and bleeding spots)and the creepy crawlies in my nose,ears and down my throat, mostly left side. My eyes are very itchy and my eyesight has gotten worse with new issues in right eye. I occasionally get a dry cough. It comes and goes. I tried pouring Hydrogen peroxide on my hands and it burned a lot;then white marks appeared all over. Not the white bubbling you would get on a cut though. Looked almost like white paint. I am getting stomach problems now, lots of grumbling, pressure, fullness,nausea and gas bubbles.I have used tea tree oil on my skin which seems to help kill some off. If I use a thick body cream on skin(I think it suffocates them) the white granules start coming to the of my skin . I can feel them coming out of skin(tiny,white, grains) . I had one prescription of Albenza(1 and then another 1 two days after) it did give me some relief but didn't work obviously. I was able to get it through a family friend who is a GI doctor but not well educated in the parasites. I had Stool samples tested which came back negative. However, I read somewhere that laxatives can create a false negative and unfortunately I had taken them the night before. I thought it would flush all the critters out if they were there and they could diagnose this. I also was diagnosed with a UTI today and was given antibiotics. Let's all pray for wisdom for our doctors and ourselves, healing and guidance. I am trying to remind myself that His word tells us "do not be anxious or fearful about anything" he has us in his hands we have to trust in Him. I will begin prayers for all on here suffering with the same unanswered questions. My skin is prickling as I type and I am really uncomfortable. I took another Albenza this afternoon so I think that is why. God Bless everyone and let's all pray for one another.

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    3. I am so sorry you are suffering with this. It sounds like it could be the parasites I am dealing with. I have been getting UTI's regularly as the parasites burrow in and out of the bladder. In fact, the Dr.s office called me today telling me I have another. I don't know how the medical community can avoid this for much longer. Hopefully they will figure it out. I think that there just needs to be one professor who can figure this out and get some funding. Once it is known, I think it will go quickly. Thank you for the prayers, they can only help. Thanks for your comments and have a Blessed Day!

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    4. It's me again above your post:
      (AnonymousMay 31, 2017 at 9:08 PM)
      I think our prayers may be answered!!! I left several posts on your blog...LOL! Because I couldn't find my way around but have been working my way and I got back to this original post from Wednesday 31st. I left you my email on one of them, not sure which one though. Ok I think I got the test we all need. Strongyloides Antibody IGg or Strongyloides stercoralis Ab.IgG they might be the same thing and I'd assume the Ab=antibody. Do you have quest diagnostics where you live? If so, I'll give you the code. God Bless! Dawn

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    5. Hi Dawn, I was tested for Strongyloides and it was negative. That is thread worm. Thread and hook worm are very similar to the parasite I was actually diagnosed with. If your test comes back positive, you have thread worm. It is also hard to cure. Thank you for taking the time to write so many replies. I hope in a way it is negative so you may have something that is curable where as thread worm is super hard to cure.
      Thanks again and have a Blessed Day.

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  21. maybe you have trichomonas. in that case you should take metronidazole or tinidazole. I have the same symptoms an I tried many things. besides these medications. its worth a try. also I took essential oils and I had no symptoms. oregano oil , cinnamon , clove oil , thyme , tea tree oil . also "thieves oil" are good for infections. and if you want to buy cheap antibiotics come to Romania or have someone from here send you the medecins to the US ( if its possible to import).

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    1. Hi Sergiu,
      Thank you so much for taking the time to share all of that. I have tried essential oils (I use them daily) and the "Dazole" family of drugs.

      I actually have a diagnosis and the parasite is called "Horsehair Nematomorpha" and was led to that diagnosis by being tested for all other parasites and the results were all negative so finally we sent in the worms over and over until one of the longer worms was diagnosed! I have been careful to only try drugs available in the US as I want to make sure that everything is documented so that when they figure this out, they will know what has and hasn't worked. I have tried to post everything online so that anyone interested can see the tests I had and the outcome.

      I do need to take the time to put all the symptoms and tests on one page so finding them is easier for people rather than looking at a million posts on the subject but I have had a crazy last year and haven't had the time to get to it just yet. I do plan on that when I can get to it.

      Thank you so much for taking the time to write your suggestion and I hope that the world will soon take notice and we can figure out an easy test and cure for this crazy parasite! Have a BLESSED Day!

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  22. man in search for cureJune 12, 2017 at 2:12 PM

    Test yourself for all infectious diseases.Maybe its a hidden infection like . Lyme , bartonella , erizipel, leishmania and there are many more that produce symptoms of crawling under your skin. and before taking drugs check them so they wont be carcinogenic . I wish you the best :)

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    1. Hi Man in Search. Thanks for your comments. I was diagnosed and we haven't been able to find a cure. The antiparasite meds have done a number on my liver and bank account and didn't do anything. Thank you for taking the time to write. I believe in time they will find that this parasite is a huge problem but like Lyme, will take time to be studied. Have a BLESSED Day!

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  23. I just found one of these works in my cats water bowl along with looks like a bug swimming in the bowl along with it in pretty sure it came out of the big and that was the host I picked the parisite up with a broken and if a pair of glasses then lit it on fire killing it I also killed the big as well I never once touched it seems to me u have to touch it are swollow it are had to have an entry .but think God my cat dident get a wholed of this washed my hands even thoe i did not touch the parsite in any way are form but seems as this problem is spreading all over America

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    1. Hi Tiffany, I got your notes. If your cat didn't drink out of the bowl and you bleached it, you are probably safe. Just know that these parasites have hundreds of different species and I don't know how many are capable of living in humans or pets. They will most likely study it but as of now, they say they can't inhabit humans or animals but I have people write me nearly daily saying they are pulling these out of their skin, stool, etc. It sounds like you should be fine. If you don't have any of the symptoms, I wouldn't worry. Thanks for writing and have a BLESSED Day!

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  24. Upon reading about this parasite, many of these 'experts' seem to have conflicting information and don't seem to know too much about it. It is similar with Rat Lungworm, another parasite. I'm very sorry for all of you being dismissed and having to deal with this disease; it sounds absolutely terrifying. When the chemical isolates from the people in white coats fails, you can rely on what god has given us: self healing bodies with incredible immune systems. However our bodies only function like this when we give ourselves the resources combined with unobstruction from disease causing environments (both within and outside the body). I am no doctor, have no certiciates, but I have done much reading on holistic medicine. Natural medicine is using natural things to take care of symptoms, whereas holistic medicine is looking at the body as a whole and treating the cause of conditions. From everything I've read, virtually no disease will survive in a healthy human. You see much conflicting information on this subject, from veganism to paleo. I could type a long message describing a way of living that would be the most likely to heal you, but for the most detailed description, I highly recommend visiting: thedoctorwithin.com It is likely the most important thing I've done in my life after coming to god. I haven't done the 60 day program he outlines, but I followed the diet he recommends (but since I wasn't taking enzyme supplements, I ate 80% raw) and all of my health problems (raynauds, acid reflux, depression, anxiety, acne, etc) were gone in the first few months. I made the mistake of reverting to my old lifestyle and my problems came back, and am now going back and reading his website again to remember how to do it. It's a lot of reading and it is likely to go against a lot of what you belive is true. I couldn't read about your struggles and not say anything. I hope the best for you all, god be with you <3

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    1. Thank you so much for your comments and for taking the time to write. I do believe all that you have shared. I also know that no matter how I eat, stress plays a large part. Being a single mother for many years and living with an abusive spouse for many more years has caused much stress in my life and continues to cause stress. Even with that, I have lived as a vegetarian many times and tried raw several times. The problem I am finding with this parasite is that I believe it is in the watery veggies I am eating raw. So eating raw may not be the answer for this parasite. The two cases diagnosed in Asia, one commented that she was eating raw fruits and veggies from a near garden before getting the worm.

      I believe that maybe adding minerals may aid in killing this parasite off as I am in an area that doesn't have iodine, iron, zinc and copper in the soil so I think the veggies we eat aren't helping in those areas and may kill off the parasite in other areas that have those minerals in their soils.

      It is so hard for me to know what to eat and I CRAVE protein as I believe this parasite is like hook worm and eats on the proteins in the body which makes me tired and crave more proteins.

      I believe that science will catch up at some point and help those of us suffering with this. I have heard of the Dr. within site before somewhere but have tons going on right now. Hopefully when I get my youngest moved to college and some issues with my other kids taken care of at the end of the month, I will be able to take the time to do some research. I am trying a new herb I researched a few weeks back and ordered online which came yesterday and will post about it if I see any results from taking it.

      Thank you again for all your kind words and suggestions, it means a great deal to those of us searching. Have a BLESSED Day!

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  25. But the worms I've found in my stool have been dark brown and look almost identical to a human hair. Also the ones ive coughed up in my phlemn are smaller somewhat but also dark brown. The worms shown in your photos are white. Any ideas?

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    1. Hi Jenn, Horsehair species have more than 2000 types if I remember correctly. The ones that I look at under a loop after soaking my hands are dark and more like the ones seen coming out of insects. The 4-5 inch ones in my stool were nearly white but did the Gordian thing, the larger one was transparent and off white. Maybe the larger and longer they get, they get whiter like old human hair? maybe it is where they are in the body and if they are in stomach acid verses skin? I don't know. You could just have a different species. I would say send them in and get them tested. Send them in normal saline (contact solution)and write a note saying you know of someone who was diagnosed with "horsehair nematomorapha" and wondered if it could be that as you have all the symptoms. If what you have is NOT a known human parasite, it may give them a place to look. It took me years of sending things in before they could diagnose it sending back, "No known human parasite" etc. In a way, I hope you don't have this parasite as I haven't found a cure but if you do, just let your state epidemiologist know and notify the CDC as if enough people get diagnosed, they will have to do something eventually. I'll pray that you can find a diagnosis and hope you have a BLESSED Day!

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  26. Hello could the lady who created this blog please get in touch with me or tell me how I can get in touch with you. I am terrified for myself and my children, especially my son who is 5 1/2 and my husband's very rapidly declining health. Doctors and nurses keep dismissing what I am telling them, my husband thinks I'm crazy I believe and I'm at a loss on what to do. I am swelled so bad I feel like I'm suffocating at times and one is wrapped around my ear drum I believe. This came about after an attempt with permethrin Cream to cure our "scabies". And all at once my left foot swelled to the point I thought it was going to explode and then my hand and I could literally feel my whole body racing I knew then something wasn't right. I also keep hearing my neck cracking like it is popping. I'm really scared, thank you!!!

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    1. I posted a reply to your comment on my youtube channel. You can write me privately on my youtube channel but as I shared, I have no cure and am posting about every new symptom and test hoping that eventually enough people will get diagnosed that the CDC and science will recognize that this is a human parasite and many people have it! Have a BLESSED Day!

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  27. I too have suffered for almost 4 years with various similar symptoms. I have tried everything I can think of. I was looking towards systematic candidiasis, a fungal infection of yeast that attracts various bugs/parasites causing a state of confusion for me with what my symptoms meant or could be. Last night I rubbed regular salt on all of my skin while in the bath and finally saw what looked like transparent worms that magically seeped out of my skin and visible by the clumps of salt. No symptoms for the rest of the night and my skin looks amazingly better. Gonna see how this goes.

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    1. Thanks for that information. I have bathed in salt baths but can't seem to get anything visible out. The issue I have is that most all the treatments people are sharing is getting them out through the skin. The main problems is the nematodes inside. I wish we could find a way to kill those off so we didn't have to deal with the worms. A woman on my youtube video said she used clear anti-itch cream on the rashes on her face and could see them come out and then in her hair and used a lice comb to get them out once the cream worked to get some relief. I pray that science will figure it out soon and we can find a way to kill them inside and out! Thank you SO much for sharing what has worked for you and if people keep sharing, hopefully it will lead to a cure! Have a BLESSED Day!

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  28. Have you tried H202 taken internally? 35% food grade hydrogen peroxide diluted down...Google "One Minute Cure" Idk if it'll work or not, but I read parasites can't live in an oxygen rich environment, it kills them...it's a 23 day protocol, but you can take it for 6 months if needed and then stay on a maintenance dose weekly...my family and I have what I think is pinworms/threadworms...we're going to give this a try asap...I hope you get rid of what you have very soon, living with parasites, isn't living...

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    1. Thank you so much for writing. I did take it a few years back and things got crazy and I stopped taking it as it got put away for an event and out of sight, out of mind happened for me.

      I don't remember noticing any big change in my health but probably wasn't taking enough or as consistently as is needed or something.

      I know I have a cousin that said that she has all the symptoms and that Hydrogen peroxide internally is the only thing that worked for her and made her feel better so maybe I need to give that another chance.

      I hope your family finds a cure for what is afflicting you.

      Thanks for taking the time to remind me of this! Have a BLESSED Day!

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  29. hi , my name is Tonya , i have had this for at least 2 years . they wont listen , the doctors dont believe me. my caretaker is the only one that does cause she has seen them. i need your help. i dont have much money , my medical insurance is medicare and medicade. these things are running my life . everytime i shower they are everywhere. i get rash every 20 days or so. its bad on my face. i am disabled and freeking out. honestly i am suicidal. please help me

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    1. Hi Tonya, I am crying for you as I type this. Mostly because I TOTALLY understand what you are feeling! I am so grateful I have a Dr. that believes me and that I have been diagnose but, I feel them crawling around inside of me and am so tired that I want to lay in bed most days. My eyes hurt most days and are yellow. I TOTALLY get where you are with the suicidal thing. People just don't understand that these parasites cause chemical changes in the brain and you do think those type of thoughts! You need to know that those thoughts are NOT YOURS! I don't know what to tell you about how to cure them as I am still trying new things daily. I just ordered another herb which arrived at the health food store today. I KNOW that eventually we will find the cure but for now, I pray LOTS! I get the rashes. I get the stress. I get the freaking out! YOU ARE NOT ALONE!!!!! I will pray for you. I will continue posting what people suggest. I will post what I try if it works. I don't always post what I am trying as I don't want people to waste money if they don't work. Peroxide soaks work but cause yeast type rashes if done too much. Thieve oil (look it up in the search at the bottom of the page and you can read about it) on my neck and a few drops in my mouth through the day help keep them out of my thyroid. Taking oregano oil, colloidal silver, GSE, olive leaf extract, and neem oil seems to help some but you have to take it really regularly to keep up on them otherwise, it just makes it worse by killing the adults and then the eggs hatch causing a massive infection. I also don't have insurance currently and don't have tons to spend on meds and testing but don't know what else I could try but in reality, I just keep searching and praying and know that in His time, God will reveal a cure.

      I will say a prayer for you. PLEASE don't kill yourself. Call a hotline. Talk to someone who understands. Join an online forum for Morgellons with people who have been told they are crazy as I believe the many Morgellons sufferers really have this parasite. I will continue to pray for those that write and if you really ever are serious about suicide, please see your Dr. and get some help. I wish I had more to offer you in the way of help. I pray that science will figure it out soon so we can all escape this nightmare. Have a BLESSED Day!

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  30. I’m from the uk and think i have this. My dad thinks im insane and i sent a stool sample a month ago that stilll hasnt come back. I want to touch and hold other people but everytime i do im terrified they’ll get them. I’m constantly tired my eyes get gunky or blurry my nose itches and my face tingles with it. Have tried Ovex for three months and i still have them in my stomach, i don’t know what to do....

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    1. I am so sorry you have all these symptoms. It is awful to not know what you have. I don't know of any other parasite that has all the same symptoms I have but maybe you will be diagnosed with something else which is probably good for you if they do.

      I haven't had any luck with the anti parasite medication but am still trying all sorts of things. I don't know that they will find anything in your stool if it is this parasite as it isn't in the database for humans yet. I hope that at some point soon they will develop a test for it and include it in humans so more can get diagnosed and they can start to study it and develop better testing and treatments.

      I wish I had more to offer but don't know how to help you. I will continue to post on my blog and my youtube channed: thesecretisgratitude and include things I have tried and any more information that comes up. Keep checking back or subscribe so you will be able to see when things are posted. I wish I had more to offer. I am just dealing with it the best I can and sharing what I find.
      Keep up your spirits and try to keep them out of your head as much as possible. I am hoping to be able to get all the information on one page so that you don't have to search my blog but my videos are up to date with the last one being last week so you can watch that and see what I am using to keep them out of my eyes and keep the rashes down if you have those.

      Thanks for writing. Have a Blessed Day!

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